STRENGTH IN NUMBERS

Strength in Numbers dedicated to my late mother Kay

Welcome To Strength in Numbers

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swore never to be silent whenever and wherever human beings endure suffering and humiliationWe must always take sidesNeutrality helps the oppressornever the victimSilence encourages the tormentornever the tormented.

Quote from Elie Wiesel

                                                    

A blog for you…..

This is where you can have your stories published about the care you or your loved one have had while in hospital. This is where you can interact with others. This is where you can view helpful links, and news stories.

You can email me directly on joannaslater2@gmail.com if you would like me to publish your story, your campaign, your website. You can also email me any helpful links which I can publish on the blog.  Joanna Slater, Author of The Last Six Months http://www.joannaslater.com

Follow me on Twitter and Facebook

icon-twitter  @joannaslater

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Filed under: Uncategorized,

Dealing With Medical Matters? Choose a FREE eWorkBook That Can Help You Today, By Brad Meyer

Dealing with medical matters can be overwhelming. It’s easy to lose your way – not just intellectually, but emotionally too. Select one of twenty-four eWorkBooks that can help you with the emotional side.

Use the interactive Anonymous eWorkBook Selector Tool by clicking the link here  http://collaboration.co.uk/2015/03/26/dealing-with-medical-matters-the-emotional-side/ to identify what state of mind will help you be most resourceful when dealing with medical matters.

Then select your FREE eWorkBook of your choice so that you can use when you need it.

Filed under: Self Help, , ,

“Our baby was a hero” – parents speak one year on from their baby´s death

For Jess Evans and Mike Houlston from Cardiff, the birth of twin boys Teddy and Noah on 22 April 2014 was one of both heartbreak and hope. Teddy was born with a rare yet fatal condition – anencephaly – but his parents were determined his short life would not be in vain. Once the diagnosis was confirmed during pregnancy, the parents discussed and wanted, if possible, for his organs to be donated. The family managed to spend precious time with him before he passed away and Teddy became the youngest organ donor in the UK. In the last 10 years, 39 babies younger than 2 years old have become organ donors helping to save the lives of strangers.

As his twin Noah celebrates his first birthday the family are using the anniversary to mark the occasion when his brother Teddy became a hero. His kidneys were transplanted to help save the life of another person.

Click on the link to read more

http://organdonation.nhs.uk/TeddysStory/index.asp

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Sign up to the NHS Organ Donor Register and tell your relatives that you want to donate. Visit the Registration form or call 0300 123 23 23.

Filed under: Self Help, Uncategorized,

To run the NHS better, we must remember the people at its heart

The National Health Service continues to be the top issue for voters in the build up to the UK general election. With a black hole in its funding to fill debate over privatisation, centralisation of power, and how it should be run, the NHS is also becoming the key battle ground for politicians hoping to be elected.

In the debate over which party will be responsible for the UK’s public services, and especially the NHS, there seems to be a growing stranglehold of two unhelpful business ideas: “financialisation” and “managerialism”. Both of these approaches dehumanise and objectify staff. It’s a worrying and unhelpful way to talk about the people in the UK’s largest work organisation.

Click on the link to read more

http://theconversation.com/to-run-the-nhs-better-we-must-remember-the-people-at-its-heart-40709?

Health workers strike

Filed under: NHS, , ,

No prosecution over death of nine-day-old baby Joshua at maternity unit where midwives failure’ to spot infection sparked inquiry into 18 other baby deaths

Police have confirmed that a prosecution will not take place over the death of a nine-day-old baby which sparked an inquiry into care at a maternity unit where 18 other infants died.

Joshua Titcombe, from Dalton-in-Furness, Cumbria, was born at Furness General Hospital in2008, but died days later after midwives repeatedly missed chances to spot and treat a serious infection.  His father James had argued for the inquest in 2011 after refusing to accept the initial explanations given for Joshua’s death and filing an official complaint about his treatment. It was uncovered that the infant’s observation chart had gone missing and was never found, while a coroner accused midwives of ‘colluding’ over mistakes made.

A police investigation into Joshua’s death was launched in March 2011 and later widened to include the deaths of 18 other babies and two mothers at the hospital.  But in 2012 detectives said no action would be taken in relation to the deaths, apart from Joshua’s case, which had been passed to the Health and Safety Executive (HSE) for its consideration. They also investigated 14 births which involved complications, but also recommended no action be taken in relation to them.

Today, (24th April 2015) Cumbria Constabulary announced the HSE had notified them that it would not be carrying out any further investigations and its four-year-long investigation into the cases of 35 people who suffered within the hospital maternity unit between 2004 and 2013 has now been closed. 

Click on the link to read more

http://www.dailymail.co.uk/news/article-3053590/No-prosecution-death-nine-day-old-baby-Joshua-maternity-unit-midwives-failure-spot-infection-sparked-inquiry-18-baby-deaths.html

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Tragic: Joshua Titcombe was born at Furness General Hospital in November 2008 but died nine days later

Filed under: NHS, NHS Blunders, , , ,

102 year old Dancer Sees Herself on Film for the First Time. “It don’t mean a thing if it ain’t got that swing.”

I just had to post this film. It shows Alice Barker 102 years in her youth.

 This is why it’s so important to look beyond the aging years and know that in the minds of our elders they had a life, they are still young, just trapped in an aging body. Joanna 

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David Shuff owns a therapy dog, which is how he met Alice Barker, age 102. Barker had been a well-known and successful dancer in the her day, and performed with some of the biggest names of stage and screen. I guess, however, she was just one of those people who didn’t like to see herself on screen. I can sympathize (because unlike Barker, I’m painful to watch). In the intervening decades, the physical recordings and other memorabilia of her time on stage was lost, including the films.

In addition to owning a therapy dog, David Shuff works with Mark Cantor for Jazz on Film, and together they tracked down footage of Barker. This is the first time she’s ever seen it. Shuff also noted that although he wishes so much of the video wasn’t him talking, it took a while to get Barker warmed up and talking about her memories, particularly when she wanted to just watch.

Alice Barker was a chorus line dancer during the Harlem Renaissance of the 1930s and 40s. She danced at clubs such as The Apollo, Cotton Club, and Zanzibar Club, with legends including Frank Sinatra, Gene Kelly, and Bill “Bojangles” Robinson.

Please click on the link to watch Alice Barker dancing, she was beautiful and still is.

Filed under: Elderly, Uncategorized, ,

Two doctors face manslaughter charges as woman died after emergency caesarean. An international arrest warrant has been issued for Dr Azeez

Frances Cappuccini, 30, died just a few hours after her son was delivered at Pembury Hospital in Tunbridge Wells, Kent.

Anaesthetists Dr Nadeem Azeez, 52, from Tunbridge Wells, and Dr Errol Cornish, 67, from Bromley, Kent, have been charged with gross negligence manslaughter in connection with her death.

An international arrest warrant has been issued for Dr Azeez, who is thought to have left the UK and returned to Pakistan.

The Crown Prosecution Service has also authorised a corporate manslaughter charge to be brought against Maidstone and Tunbridge Wells NHS Trust.

Click on the link to read more

http://www.express.co.uk/news/uk/571987/Two-doctors-manslaughter-woman-died-emergency-caesarean

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Frances Cappuccini died within hours of giving birth

Filed under: Hospital, NHS, NHS Blunders, , ,

How is the NHS performing? NHS providers in England overspent their budgets in 2014/15 by more than £800 million

As the NHS begins a new financial year and we move from one parliament to another, it is clear from the performance on key headline targets and standards and from our latest survey of finance directors that the NHS will face huge challenges this year.

It now seems certain that hospitals and other NHS providers in England overspent their budgets in 2014/15 by more than £800 million. This is despite nearly £900 million being provided by the Treasury or switched from capital budgets to plug the growing black hole in NHS finances. According to the regular survey undertaken for the report, almost 60 per cent of trust finance directors said that they were dependent on additional financial support or had drawn down their reserves in 2014/15.

The financial outlook for 2015/16 is even gloomier, with two-thirds of hospitals concerned about staying within budget over the next year. Although commissioners are more optimistic, 40 per cent of finance leads from clinical commissioning groups are also concerned about whether they will be able to balance the books in 2015/16.

Click on the link to view report

http://www.kingsfund.org.uk/publications/articles/how-nhs-performing-april-2015

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Filed under: NHS, , ,

Being ignored, neglected and forgotten. A powerful video from Age UK

This video really brings out the message, one day we will all be that much older but still the same person that took our first breath in life. This video should be compulsory for all nurses, doctors, and carers who work caring for the elderly to remember. Joanna

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See the contrast between the life Charles has now to the one he has lived. He’s being ignored, neglected and forgotten. Human rights give people the power to challenge poor care, and they apply to all of us, whatever our age.

Please share this film because people need to talk about human rights for older people.

Please click on the link to watch this powerful video

https://www.facebook.com/ageuk/videos/1004159362941871/

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Filed under: Care Homes, Dementia, Disabilities, Elderly, , , ,

Beating Bowel Cancer

Stephen Browne was 45 when he was diagnosed with bowel cancer – it was his wife that persuaded him to go to his doctor when he noticed symptoms.

Beating Bowel Cancer – Call our helpline on 020 8973 0011

https://www.beatingbowelcancer.org/

Filed under: Cancer, Self Help,

Warning over late bowel cancer diagnosis in the Midlands. ITV report

New figures by charity Beating Bowel Cancer show many bowel cancer patients in the East Midlands are still diagnosed too late, costing the NHS millions.

Nottingham NHS Clinical Commissioning Group comes out as one of the five worst performing for early diagnosis as does East Leicestershire and Rutland. There is currently a huge variation within the NHS across England in terms of early diagnosis of bowel cancer – the UK’s second biggest cancer killer – with the best performing Clinical Commissioning Groups (CCGs) diagnosing 63% of patients early, compared with only 30% in the worst. The figures show that if every NHS region in England performed as well as the best at diagnosing bowel cancer early (stages 1 and 2), 3,200 lives could be saved and £34 million could be diverted to other bowel cancer services and treatments.

Those diagnosed with stage 1 bowel cancer have a 97% chance of survival, compared to just 7% when the cancer is more advanced. However, not only does early diagnosis provide patients with a much better chance of survival, it also costs the NHS far less. This is due to the fact that treatment for the earlier stages of cancer is often less intensive and invasive than treatment for more advanced disease.

If every patient with bowel cancer was diagnosed early (at stage 1 or 2) the NHS could avert treatment costs of over £103 million.

“It’s unacceptable that there are CCGs in England that diagnose less than 1 in 3 patients at an early stage.

If they all performed as well as the best, thousands of lives could be saved and millions of pounds could be freed up to be used for other bowel cancer treatments, which patients are frequently told are unaffordable.”

– CHIEF EXECUTIVE OF BEATING BOWEL CANCER, MARK FLANNAGAN
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Late diagnosis for bowel cancer could be costing the NHS £103 million every year,Photo: Anthony Devlin/PA

Filed under: Cancer, NHS,

How to save the NHS – by the people who work for it. By Homa Khaleeli, paramedic for the NHS

Paramedic: ‘Binge drinkers should get a bill of £60 to £80 when they are discharged from hospital’

I have been a paramedic for the NHS for 13 years. We are under a lot of pressure; an ambulance crew in my service is often sent out on 10-14 calls a day. Some calls can take an hour, to an hour and a half – and we work 12-hour shifts. The majority of the time we have to work overtime, anything from 20 minutes to several hours.

We rarely get breaks; you may try to snatch lunch, get a coffee and a rest in the 14 minutes between passing a patient on to the hospital and leaving. Some of my colleagues are on new rotas – working nights getting hardly any rest, and then being put on early shifts. In my opinion, two sets of people are being killed here – ambulance personnel, slowly and surely before we retire; and patients dying because we are on unnecessary call-outs when they need us. Paramedics and ambulance personnel are leaving their jobs in droves. Private ambulances are now attending emergency calls.

NHS 111 is partly to blame – especially the privately owned parts. All they care about is not being sued so they send ambulances out for everything. If someone has had a cough for three days, so has chest pains from that, they will call us out. Some even tell patients they might be having a heart attack! It’s disgusting.

Click on the link to read more

http://www.theguardian.com/society/2015/apr/20/how-to-save-nhs-election-labour-conservative-billions

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Homa Khaleeli, paramedic for the NHS

Filed under: A&E, Hospital, NHS, , , ,

Greed of the NHS fat cats: How bosses got £35MILLION in pay rises last year, enjoying champagne parties, exotic holidays and shopping trips to Harrods as hospitals battled to make ends meet

Hospital bosses are today accused of ‘shamelessly milking the NHS’ by taking £35million in pay rises during the worst funding crisis in a generation.

Some executives earned more than £1million last year and even at hospitals with the worst standards of care directors enjoyed pay packages worth up to £5,000 a day. The figures can be revealed after the Daily Mail carried out the most comprehensive audit ever of trust accounts and the exploitation of the NHS pension scheme by senior executives.  The extraordinary results are ‘on the scale of the MPs’ expenses scandal’, says one influential Government adviser. The Mail will this week lay bare the staggering ways in which bosses are milking the NHS for £210million a year despite its worsening financial crisis. We will reveal how:

  • Nearly 1,000 NHS bosses earn £100,000 or more a year when their pension contributions are taken into account.
  • Despite the funding crisis, the number of bosses with pay packages worth more than the Prime Minister rose by 30 per cent last year to nearly 600.
  • Nearly 50 hospital bosses pocketed more than £400,000 last year.
  • Some sat on the very committees that handed them huge pay rises.
  • Some health chiefs are using a common tax avoidance tactic by channelling their huge salaries through their own companies.
  • Others are being rewarded for abject failure with new jobs in the NHS and getting bumper paydays after silencing whistleblowers.
  • Chief nurses are taking home up to £700,000 a year – while their £26,000-a-year staff face cuts and frozen pay.
  • One temporary executive was paid £25,000 for two months work but spent much of this time in a villa in Spain and a spa resort in California.

Click on the link to read more

http://www.dailymail.co.uk/news/article-3046054/Greed-NHS-fat-cats-Hospital-chiefs-got-35m-pay-rises-year-bosses-raked-400-000-Tory-Labour-demand-inquiry-Mail-revelations.html

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Filed under: NHS, , ,

Terminally ill woman accuses NHS of robbing her daughters of their mum by refusing to pay for medicine

A terminally ill woman has accused the NHS of robbing her two daughters of their mum by refusing to pay for life-saving treatment. Jemma, 31, suffers from a rare stomach cancer known as Wild Type Gastrointestinal and is currently taking three life-prolonging drugs. However, NHS England stopped dishing out the final drug in the sequence last month. Jemma said: “The final drug is the most effective and it is heart-breaking they have removed it from the treatment list. “The cancer that I have is extremely rare and the research into it is limited so it angers me that they are removing a drug that has been proven to work. “I am lucky that I have managed to spend 14 months on the first drug, Imatinib, in the series but I know that it will soon have no effect on my body.  “The second drug, Sutan, is not very effective and I know that when I have to be put on it I will have minimal time left. “You can buy Regorafenib [the third drug needed] privately but that costs £3,700 a month and I don’t have that kind of money.

“Family members have offered to sell their houses and belongings to pay for my treatment but I can’t accept that. “I cannot ask my family to put their lives on hold when I might only get another year of life.”

Click on the link to read more

http://www.mirror.co.uk/news/uk-news/terminally-ill-woman-accuses-nhs-5551577

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Urgent: Jemma Peacock needs life-saving drugs for her rare form of cancer but the NHS have withdrew them

Filed under: Cancer, NHS, , , ,

NHS executives ‘earn £35 million in pay rises’ despite funding crisis

Some hospital bosses took home more than £1 million pounds last year, while others were accused of exploiting loopholes to maximise their pay packets

NHS executives earned more than £35 million in pay rises during the worst funding crisis for the health service in a generation, it has emerged. Some hospital bosses took home more than £1 million last year, while others were accused of exploiting loopholes to maximise their pay packets. Analysis of trust accounts by the Daily Mail revealed that the number of executives paid more than the Prime Minister rose by 30 per cent last year to nearly 600.

Nearly 50 hospital bosses pocketed more than £400,000 last year despite standards of care slipping, the figures showed.

Some were found to have played the system by ‘retiring’ for a day, then returning to their posts full-time, allowing them to claim a huge pension lump sum early. Others were reported to have avoided tax on their earnings by channelling their salaries through private companies.

Click on the link to read more

http://www.telegraph.co.uk/news/health/11548862/NHS-executives-earn-35-million-in-pay-rises-despite-funding-crisis.html

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Filed under: NHS, , , ,

Nurses call for post-reg specialist qualification in care of older people. By Nicola Merrifield, Nursing Times

“Neglected” care home nurses are failing to receive adequate preparation for the role and are unable to access the same career development opportunities as NHS nurses, according to a survey.

Around 70% of survey respondents said undergraduate pre-registration nurse education did not prepare the future workforce with the skills, knowledge, competencies and experience to deliver high quality care to older residents. This was despite the vast majority, 87%, of respondents – which included nurses, managers and community registrants working in care homes – reporting that a particular set of specialist competencies were required to do the job.

A post-registration specialist qualification for care of older people – including care home nursing – was suggested by many people taking part in the research project, which was carried out by academics at the University of York and funded by the Royal College of Nursing Foundation. Such a qualification would ensure the nursing care home workforce was “fit for purpose” and able to meet the increasingly complex care needs of residents, said the report on the study – called Supporting Nursing in Care Homes.

Click on the link below to read more

Nurses call for post reg specialist qualification in care of older people

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Filed under: Care Homes, Elderly, , ,

NHS in war on staff drug use

DOZENS of stressed out NHS workers have been suspended, disciplined or sacked for alcohol and drugs abuse in Scotland.

Around 80 medical staff were temporarily banned from their duties because of substance abuse, with a further 54 facing additional disciplinary action. Up to 20 lost their jobs because of drink and drugs issues while some 50 were offered treatment to overcome their addiction. But it is thought the figures, obtained under Freedom of Information legislation and excluding Tayside and Grampian health boards, represent only the tip of the iceberg.

UK wide, around 100 cases involving substance abuse end up in front of the regulatory body, the General Medical Council (GMC), every year. A support organisation for dentists and doctors struggling with drugs and alcohol admitted it was a huge issue which was simply not being discussed.

Click on the link to read more

http://www.express.co.uk/news/uk/571443/NHS-war-staff-drug-use

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Filed under: GP's, Hospital, NHS, , , , ,

Can the NHS attract more GPs? By Siobhan Chan, GP online

With recent figures showing that more than one in five GPs in the UK has been trained abroad, it is clear that overseas-trained GPs are sorely needed in the NHS. The Induction and Refresher (I&R) Scheme, launched by Health Education England, NHS England, the BMA and the RCGP this month, aims to make it easier for overseas GPs to practise in the UK, to encourage UK-trained GPs back from abroad, and to bring back GPs from career breaks. It offers a £2,300-a-month bursary for GPs going through an induction and assessment programme. But doctors applying to work in the UK say that while the I&R scheme is an improvement on previous ‘haphazard’ local initiatives, it still needs major changes.

As part of the scheme, GPs have to take a multiple choice clinical knowledge test (MCQ), and are assigned a supervised placement for two weeks to six months based on their performance, before they can be put on the performers list. But with some GPs reporting long waits, repeated checks and bureaucracy, and warning that overseas colleagues have been deterred from practising in the UK, will the I&R scheme boost GP numbers?

Click on the link to read more

http://www.gponline.com/nhs-attract-gps/article/1343021

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Vacancies: Can the I&R scheme boost GP recruitment?

Filed under: GP's, NHS, ,

Doctor on call for major disasters needed in struggling A&E department

A DOCTOR on call for major disasters was sent to a crisis-hit hospital emergency department after severe bed shortages led to patients being treated in corridors.

The Worcestershire Royal Hospital’s A&E department was under so much pressure West Midlands Ambulance Service had to send in its medical incident officer to help beleaguered staff after months of problems. Unions said it was “totally unacceptable”, adding that its members were “furious”. The Worcestershire Acute Hospitals NHS Trust, which runs the hospital, apologised but said the circumstances were “less than ideal”. Pressure on beds had been “a constant issue” for more than a year. It simply could not discharge patients quickly enough, resulting in a backlog.

Click on the link to read more

http://www.express.co.uk/news/uk/571270/The-Worcestershire-Royal-Hospital-doctor-disasters-A-E

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A medical incident officer has to help beleaguered staff after months of problems

Filed under: A&E, Hospital, NHS, ,

Need your help. Has anyone lost parents to nursing home or hospital on LCP?

Has anyone lost parents to nursing home or hospital on LCP? please email joannaslater2@gmail.com in confidence Thank you

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Filed under: Care Homes, Elderly, Hospital, Uncategorized,

Care home shamed into improving food after son posts pictures of ‘disgusting’ meals on Facebook

A man shamed a care home into serving better meals by showing thousands of people his pictures of “disgusting” food given to his 81-year-old mother.

Steve Ashton, 40, put a photo of the corned beef and jacket potato given to his mother Joan on Facebook and it was shared more than 129,000 times. He posted the photograph after the sheltered home refused to admit there was a problem with the quality of food served to residents. Care chiefs have since apologised for meals described as “worse than dog food”. They have now agreed to bring in changes to the food, which costs care residents £42 a week even if they are on holiday and not receiving meals. Mr Ashton said: “I am disgusted with the low-quality food that this facility is being allowed to serve. Don’t the elderly people in this place deserve to have good food that is catered for all? “It is my mission to get the food at this place changed and to get them serving high quality food and meets the needs of all its residents.”

He began his campaign after being told daily by his mother that she did not want to eat the food. His mother moved into Aneurin Bevan Court in Newport, South Wales, eight months ago and had been complaining almost daily about the quality of the food.

Click on the link to read more

http://www.telegraph.co.uk/news/health/news/11545391/Care-home-shamed-into-improving-food-after-son-posts-pictures-of-disgusting-meals-on-Facebook.html

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One of the meals on offer at the care home

Filed under: Care Homes, Elderly, , ,

Why 60 is the new middle age: Our longer, healthier lives means we aren’t classed as elderly until at least 70

Retirement may be beckoning and your knees may be creaking. But if you are 60, you are merely middle-aged. Scientists say that as we live longer, we need to rethink what we classify as being old. They say that rather saying old age starts at a fixed age such as 60 or 65, we must factor in how much longer we have to live. They suggest that we don’t think of ourselves as being old until we are within 10 to 15 years of the average life expectancy for our countrymen and women.

The average life expectancy for women in the UK is 82.8 years, meaning British females needn’t consider themselves old until they are 72 or 73. Similarly, with male life expectancy at 79 years, men don’t become old until they are close to 70.  And if old age starts later, by definition, middle-age does too.

Click on the link to read more  (Now that’s good news)

http://www.dailymail.co.uk/health/article-3040338/Why-60-new-middle-age-longer-healthier-lives-means-aren-t-classed-elderly-70.html?ITO=1490&ns_mchannel=rss&ns_campaign=1490

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Filed under: Self Help, Uncategorized, ,

NHS stress: a third of GPs plan to retire in next five years

A third of GP’s in the UK plan to retire in the next five years because of high stress levels, unmanageable workloads and too little time with patients, in a move that would exacerbate the existing difficulty of getting an appointment.

A poll of 15,560 GPs by the British Medical Association (BMA) has found that 34% intend to stop working by 2020, with many others going part-time, moving abroad or even abandoning medicine altogether. The findings thrust the issue of GP numbers into the election spotlight as the BMA accused the political parties of making “absurd” promises to tackle what it called a “crisis” and of ignoring the reasons why NHS general practice is facing a worsening shortage of medics.

Dr Chaand Nagpaul, chair of the BMA’s GPs committee, said: “It is clear that incredible pressures on GP services are at the heart of this problem, with escalating demand having far outstripped capacity. “GPs are overworked and intensely frustrated that they do not have enough time to spend with their patients, especially the increasing numbers of older people with multiple and complex problems who need specialised care.”

Click on the link to read more

http://www.theguardian.com/society/2015/apr/15/nhs-stress-third-gps-plan-retire-five-years

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Filed under: GP's, Hospital, NHS, , , , ,

Our account of the appalling lack of duty of care and the terrible death of our mother on unauthorised LCP, who died on 14 June 2013. By sisters Rosalind Brewer and Marilyn Ealy

All your stories, Strength in Numbers. Please read this in-depth shocking account written to the hospital complaining of the course of events which led to Rosalind Brewer and Marilyn Ealy’s mother’s death.

Dear Sir/Madam

We’re writing to you to make a complaint about the lack of care, attention, compassion, and appalling communications received from the staff at Frimley Park Hospital to both our Mother and ourselves, and the circumstances that led to our Mother’s recent death.

Before our Mother Mrs Gerda Ealy (who was 88) was admitted into Frimley Park Hospital, and before the media announced the abuse of the Liverpool Care Pathway, we already feared the outcome of our Mother’s admission into hospital. We also expressed our concerns to the ambulance drivers and staff at A&E.

Our Mother was not terminally ill, but was elderly and as a result of this we feel it underlines the fact that she was targeted by putting her on LCP in order to hasten her death.

Please continue to read by clicking on the PDF below. It will surely shock you. The family want justice.

OUR ACCOUNT – COMPLAINT OF THE LACK OF CARE OF OUR MOTHER WITHOUT NAME

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Filed under: Elderly, Hospital, NHS Blunders, Uncategorized, , , ,

Midlands hospitals pay out £45 million in just 12 months for clinical negligence

CASH-strapped hospitals in the West Midlands spent £45 million in just one year on clinical negligence claims.

The Heart of England NHS Trust, which runs Heartlands, Good Hope and Solihull hospitals had the biggest bill in the region – £13.9 million for 2013-14. The Trust also paid more for lawyers than any other group in England – coughing up £1.5 million in legal fees. Payouts include patients of surgeon Ian Paterson, who carried unlicensed and unnecessary operations on hundreds of women at Solihull Hospital.

Click on link to read more, and the full list of total costs for the region:

http://www.birminghammail.co.uk/news/midlands-news/midlands-hospitals-pay-out-45-9032811?

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Filed under: Hospital, NHS, NHS Blunders, , ,

Now a breath test to stop stomach cancer: Screening spots chemical signals that are linked to development of tumours

Tests spot chemical signals in exhaled air linked to tumour development. About 7,000 people develop stomach cancer in the UK each year

A simple breath test that could help detect the early stages of stomach cancer has been developed by scientists. The screening system spots chemical signals in exhaled air that are linked to tumour development. By looking for distinctive ‘breath prints’, researchers were also able to distinguish between patients at high and low risk of developing the disease.

Click on the link to read more

http://www.dailymail.co.uk/news/article-3037837/Now-breath-test-stop-stomach-cancer-Screening-spots-chemical-signals-linked-development-tumours.html?ITO=1490&ns_mchannel=rss&ns_campaign=1490

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Breathe: The tscreening system spots chemical signals in exhaled air that are linked to tumour development

Filed under: Cancer, Uncategorized

NHS pays £13 million after botched births left siblings with cerebral palsy

After a two-decade legal fight the health service has finally agreed to pay compensation to a family left devastated by medical negligency

A mother has won a £13 million legal battle against the NHS after hospital blunders 17 months apart left two of her children with cerebral palsy. Paula McKay was left devastated in 1991 when daughter Natasha was born severely disabled after she was starved of oxygen during her birth at the former Sharoe Green Hospital in Preston in Lancashire. But just 17 months later her son Patrick suffered a similar botched delivery which left him needing constant care. It was months before doctors admitted there was a problem, telling his mother he was simply a ‘lazy little boy.’

Now after a legal fight lasting more than two decades Mrs McKay’s has been awarded a multi-million pay-out on behalf of her children. She is believed to be the first person to be the victim of two such catastrophic errors, made by the same hospital maternity team.

Click on the link to read more

http://www.telegraph.co.uk/news/health/news/11533356/NHS-pays-13-million-after-botched-births-left-siblings-with-cerebral-palsy.html

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Paula McKay and her children Natasha and Patrick Jackson

Filed under: Disabilities, NHS, NHS Blunders, , ,

A Doctor’s Manifesto for the NHS – An Open Letter by Dr Zoe Norris GP – Posted in The Huffington Post

Dear Mr Hunt, Mr Burnham, Mr Lamb, Ms Bours, Dr Creasy, Ms Robison, and Ms Jones,

I have watched with interest over the last few days as your policies and promises regarding the NHS have been publicised. On reflection, I think perhaps you need a few pointers. I am a doctor; I am a GP working in the service that sees 90% of patients the NHS deals with every day. I hope you won’t take offence at this letter, but your health policies, well, they are dreadful. I’m sure there are teachers up and down the country who feel your education policies are the same. Service personnel who feel similarly about your defence policies and so on. All I know is I am doing the job you are all purporting to improve, save, fund – whatever. And you are all wrong. My disclaimer is this – I am genuinely an undecided voter. Largely because I can’t believe a word of what most of you say about the NHS, but if a party did admit that the NHS is a bottomless pit of money, and that they would truly engage with doctors, nurses, and the many other NHS staff to try and improve it and its use, instead of constantly encouraging the privatisation and consumerism of our most basic public service, you would have my vote in a heartbeat.

Allow me to briefly critique your current manifestos. I haven’t separated them by party because let’s be honest, they’re much the same.

Click on the link below to read more

http://www.huffingtonpost.co.uk/dr-zoe-norris/nhs-general-election-2015_b_7047060.html

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Dr Zoe Norris

Filed under: GP's, NHS, , , ,

Coroner condemns hospital over death of newborn twin who died an hour after birth from brain damage after a doctor’s errors

Doctors at a scandal-hit hospital covered up a series of horrendous mistakes that led to the death of a twin baby boy, a coroner has ruled.

Thor Dalhaug died an hour after birth following a difficult delivery during which he suffered fatal brain damage due to a doctor’s errors, ruled Stuart Fisher, senior coroner for Central Lincolnshire. In a damning report, he said an unsupervised junior surgeon tried to deliver the baby using forceps in an ‘unorthodox and unacceptable’ way. The coroner also concluded that senior managers at Lincoln County Hospital had tried to remove the fact that forceps had been used from an account of the birth.

The report will come as a blow to the hospital, which has just been taken out of ‘special measures’. United Lincolnshire Hospitals NHS Trust was put on a turnaround regime almost two years ago because of concerns over high death rates.

Click on the link to read more

http://www.dailymail.co.uk/news/article-3035331/Coroner-condemns-Lincoln-County-Hospital-death-newborn-twin-died-hour-birth-brain-damage-doctor-s-errors.html

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Doctors at the Lincoln County Hospital covered up a series of horrendous mistakes that led to the death of a twin baby boy (pictured above with his mother Michelle), a coroner has ruled

Filed under: Hospital, NHS Blunders, , ,

Mother suing Watford General claiming medical negligence led to son, 10, heart attack and brain damage

A mother is suing Watford General Hospital claiming medical negligence led to her ten-year-old son suffering a heart attack and being left with severe brain damage.

Elijah Aldea, now aged 11, remains in a quadriplegic state after he was without a heartbeat for 45 minutes at Watford General following the cardiac arrest in April last year. Elijah, a former pupil of Sacred Heart Catholic Primary School, was born with a cleft lip and palate and two holes in his heart and had been a long-standing patient at Great Ormond Street Hospital (GOSH) in London. Days before his heart attack he had an operation at GOSH. Follow up tests showed he was anaemic and he was admitted to Watford General. Mum Gabrielle Ali, 30, thought he would just be given iron tablets, but under the instruction of GOSH, doctors decided Elijah needed a blood transfusion and to be given anti-clotting drug heparin.

Gabrielle, a biochemist employed by the NHS trust in charge of Watford General for eight years, begged doctors not to give the heparin after she had talked to Elijah’s registrar of five years, but eventually agreed when staff at Great Ormond Street threatened to report her for child neglect.  She said she even considered sneaking her son out of the hospital, but there was no way of getting past the nurses’ station unseen. As the drug was administered, Elijah’s heart stopped. Gabrielle said: “I know my son, these doctors didn’t.

Click on the link to read more

http://www.watfordobserver.co.uk/news/12881267.Mother_suing_Watford_General_claiming_medical_negligence_led_to_son__10__heart_attack_and_brain_damage/

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Gabrielle Ali and son Elijah Aldea about two years ago.

 

 

Filed under: Hospital, NHS, NHS Blunders, ,

Dogs can sniff out prostate cancer in men 98% of the time

Tests showed that a man’s best friend can detect the deadly disease in 98 per cent of cases after smelling their urine.  Experts have hailed the findings as “spectacular” and called for more support for the “tested, time-old technology.” Dr Claire Guest, co-founder of the Buckinghamshire charity Medical Detection Dogs, said research had found a 93 per cent reliability rate when detecting bladder and prostate cancer.  She said: “These results are spectacular. They offer us further proof that dogs have the ability to detect human cancer. “It is particularly exciting that we have such a high success rate in the detection of prostate cancer, for which the existing tests are woefully inadequate.”

Prostate cancer is the most common cancer in men in the UK, with more than 40,000 cases diagnosed every year.

Click on the link to read more

http://www.express.co.uk/news/uk/569831/Dogs-sniff-out-prostate-cancer

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Filed under: Cancer, , ,

Shock figures reveal ‘unacceptable’ number of children being treated on adult mental health wards

Figures obtained by the M.E.N. show at least 67 boys and girls aged 16 and 17 have been placed in adult beds since April 2011.

Dozens of vulnerable children are being placed on adult mental health wards in Greater Manchester due to a shortage of beds. Figures obtained by the M.E.N. show that at least 67 boys and girls aged 16 and 17 have been placed in adult beds since April 2011. The figures, obtained under freedom of information laws, show the number of cases are increasing. Britain’s leading children’s mental health charity has called for urgent action to end the practice.

National guidelines say it is not appropriate to place vulnerable children on adult wards. The news comes after the M.E.N. revealed how hundreds of acutely-ill adult patients are being sent to private clinics up to 260 miles from Manchester due to a bed shortage. Lucie Russell, director of campaigns and media at children’s mental health charity YoungMinds, said: “It’s totally unacceptable that the numbers of children being treated on adult wards is on the increase.

“The legislation clearly states that an adult mental health ward is not an appropriate setting for vulnerable children with mental health problems. “Urgent action must be taken to ensure that the worrying increase in children on adult wards is halted and that both early intervention and crisis services improve.”

Click on the link to read more

http://www.manchestereveningnews.co.uk/news/greater-manchester-news/dozens-vulnerable-children-greater-manchester-9011894

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Filed under: Mental Health, NHS,

‘Desperate’ Tory plot to organise own letter from doctors exposed in bombshell leaked email

Jeremy Hunt has been left red-faced after the leaked email was posted on social media by top health commentator Roy Lilley

Jeremy Hunt has been left red-faced tonight as a bombshell leaked email exposes a “desperate” Tory plot to organise their own letter from doctors. It comes just days after more than 100 leading doctors signed a letter accusing the Tory-led coalition of endangering the NHS in England. They described how the health service is “withering away”, and warned that patients would be faced with higher costs but lower standards due to the growing involvement of private firms in the NHS.

Tonight the leaked email was published on social media by top health commentator Roy Lilley who tweeted: “Tories canvassing for a ‘support the NHS’ letter from doctors – the games continue!”

Click on the link to read more

http://www.mirror.co.uk/news/uk-news/nhs-crisis-tory-plot-letter-5488071#rlabs=6

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Post tweeked from Roy Lilley

My post on the 8th April re the letter signed from 100 doctors

http://strength-in-numbers.co.uk/2015/04/08/s-9/

Filed under: NHS, Uncategorized, , , , ,

Hospital in Ashya King case reveals ‘outpouring of hatred’ directed at staff

Would you take your very ill child out of hospital against the doctor’s advice?

Please fill in our one question survey by clicking on the link

https://www.surveymonkey.com/r/Ashya

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Medics tell BBC documentary of overwhelming volume of vitriolic messages received – and defend their approach to the five-year-old’s treatment

Staff at the hospital where five-year-old Ashya King was treated for brain cancer before he was taken abroad by his parents have spoken about the “outpouring of hatred” they received – but said they would act in the same way if the situation arose again. Medical staff at Southampton general hospital told a BBC documentary how the torrent of abuse effectively shut down the hospital’s switchboard after it “became a story of a hospital [that] was chasing down a family”. One doctor said he received hate mail from someone telling him they wished his own children would get cancer and die.

The hospital came under the glare of the world’s media last August after Ashya’s parents took him abroad for treatment, against the advice of the NHS specialists who had been caring for him in Southampton.

Click on the link to read more

http://www.theguardian.com/uk-news/2015/apr/10/hospital-in-ashya-king-case-reveals-outpouring-of-hatred-directed-at-staff

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Ashya – The Untold Story will be broadcast on BBC1 at 7.30pm on Friday 10 April

Filed under: Cancer, Hospital, NHS, Self Help, Uncategorized, , ,

NHS crisis: Bosses under fire after nurse paid £2,200 to cover ONE shift

AN NHS trust has been blasted for wasting public money after it emerged that it paid a temporary nurse £2,200 to cover ONE shift.

The shocking figure, which works out at a whopping £183.33-an-hour, was handed to the nurse by the Shrewsbury and Telford Hospital NHS Trust for just one 12-hour shift. Incredibly, the unbelievable sum, which was revealed following a Freedom of Information Act request, is more than DOUBLE the rate of a neurologist. It also emerged there were 47 agency nurses working at the Shropshire trust in December last year. The trust, which runs the Royal Shrewsbury Hospital and the Princess Royal Hospital in Telford, Shropshire, has now been criticised for its spending.

Click on the link to read more

http://www.express.co.uk/news/uk/569228/NHS-under-fire-nurse-paid-2-200-for-one-shift-cover

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One nurse (not pictured) was paid £2,200 for one 12-hour shift

Filed under: Hospital, NHS, , ,

Here’s Britain’s political leaders giving a boy-band performance it will make you smile

Ever wondered what it’d be like if David Cameron, Ed Miliband, Nick Clegg and Nigel Farage teamed up in a One Direction-esque boy band?

Neither have we, but that’s the terrifying reality that we’re provided with in a new video.

In the clip, which was created by Sky News, the four political heavyweights can be seen lip-syncing to classic 90’s ballad ‘I Swear’ by All-4-One.

Click on the link to watch the video, it will make you smile

 

Filed under: NHS, Uncategorized, ,

Policy guide: Where the parties stand – Health and Care

This is a guide to political parties’ positions on key issues and will be updated as each manifesto is launched.

This issue includes NHS funding, GP access and social care, particularly of older people.

Click on the link to read

http://www.bbc.co.uk/news/election/2015/manifesto-guide#tab=issue!issue=health!party=!nation=uk

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Filed under: Elderly, GP's, Hospital, NHS, Uncategorized, , ,

Nine in 10 GPs say no to seven day opening

Almost all GPs do not want their own practice to open seven days a week, a poll of 15,000 doctors has found.

Plans for 7 day access to GPs are the key Conservative manifesto health pledge, along with improved hospital services at weekends. But the British Medical Association (BMA) survey found that 94 per cent of family doctors do not want their own surgery to offer seven day opening. The reluctance came despite the fact half of those polled thought practices should offer more extended hours to their patients. Under the Tory pledge, all patients would be able to access a GP seven days a week for routine appointments, seven days a week, by 2020.

Under the plan, groups of GP surgeries will be encouraged to band together in order to share the workload at evenings and weekends, so that not every practice has to open. One in five doctors polled said they were willing provide some extended hours by working in networks. However, the flat rejection of the idea of their own surgery opening seven days suggests major battles ahead.

Click on the link to read more

http://www.telegraph.co.uk/news/health/11523739/Nine-in-10-GPs-say-no-to-seven-day-opening.html

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Filed under: GP's, NHS, Uncategorized, , ,

End-of-life care for terminally ill ‘needs major overhaul’

The UK’s care system for dying patients with terminal illnesses is lacking and needs a major overhaul, says a damning new report.

According to London School of Economics researchers, more than 100,000 people a year who would benefit from palliative care are not getting it. Patients are being left without sufficient pain relief and respite. NHS England said it was committed to ensuring terminally-ill patients got the support and services they needed.

The report found inequalities in access to good care, with certain groups of patients more likely to miss out. With an ageing population and demand for care increasing, the problem looked set to worsen, it warned.

Those who currently miss out include:

  • the “oldest old” (aged 85 and over)
  • people living alone
  • people living in deprived areas
  • black, Asian and ethnic minority groups

Most palliative care goes to cancer patients, even though the diseases account for less than a third of deaths. Only a fifth of new referrals to specialist end-of-life services are for people with non-cancer diagnoses.

Click on the link to read more

http://www.bbc.co.uk/news/health-32201594

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Filed under: Elderly, NHS, Uncategorized, , ,

Senior doctors assess government’s record on NHS – letter in full

More than 100 senior professionals write in a personal capacity outlining their view of how the NHS in England has fared under the coalition

After five years of a government which pledged to protect the NHS, this election campaign makes it timely to assess its stewardship, since 2010, of England’s most precious institution. Our verdict, as doctors working in and for the NHS, is that history will judge that this administration’s record is characterised by broken promises, reductions in necessary funding, and destructive legislation, which leaves health services weaker, more fragmented, and less able to perform their vital role than at any time in the NHS’s history.

In short, the coalition has failed to keep its NHS  pledges.

Click on the link to read in full and the doctors who have put their name to the letter.

http://www.theguardian.com/society/2015/apr/07/senior-doctors-assess-governments-record-on-nhs-letter-in-full

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Pledge to protect the NHS … a Conservative party election poster from 2010

Filed under: GP's, Hospital, NHS, , , , , , ,

Survival guide all NHS patients must read: A leading doctor’s insider tips on getting the treatment you need – By Dr Phil Hammond For The Daily Mail

When I first walked on to an NHS ward, in 1984, patients were often discouraged from taking an active part in their own care. Some weren’t even told if they had a serious diagnosis, such as cancer or dementia. We assumed that you weren’t able to contribute, didn’t want to know, or that telling you might make you more anxious and unable to cope. And doctors didn’t waste emotion or energy on those difficult conversations about death and disability. But not knowing your diagnosis meant you couldn’t possibly participate in crucial decisions about your care, involve your loved ones or plan properly for the future. So patients had to fend for themselves.

Thankfully, times have changed. Evidence now suggests that the more involved you are – and are allowed to be – as a patient, the more likely you are to get the right care for you. Humans often take the path of least resistance and, when you’re ill, it’s usually easiest to lie back and let the professionals get on with it. But if you have a long-term illness, there comes a time when you need to get more involved and speak up, so your care can be built around your needs and priorities.

Click on the link to read more

http://www.dailymail.co.uk/health/article-3027921/Survival-guide-NHS-patients-read-leading-doctor-s-insider-tips-getting-treatment-need.html?ITO=1490&ns_mchannel=rss&ns_campaign=1490

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Carrying a printed copy of your medical records with all the key information can make a huge difference

Filed under: GP's, Hospital, NHS, , , , ,

Mother is stunned to discover she has aggressive form of cancer after reading a Facebook post describing all her symptoms

A mother who spent months feeling unwell was horrified to discover she probably had cancer – after spotting all her symptoms on a Facebook post.

Laura Everley, 36, had experienced bloating, lower back pain and constipation over a three-month period. She also frequently needed to urinate. But having previously suffered irritable bowel syndrome and endometriosis, she put the symptoms down to those conditions. It was only when she stumbled across a post on her Facebook timeline, which detailed all the same symptoms, that she realised it could be cancer. Tests later revealed she had an aggressive ovarian tumour – and the disease had begun to spread.  After performing a hysterectomy to remove her womb as well as her ovaries, surgeons revealed the cancer had already begun to spread. Mrs Everley is now undergoing chemotherapy and doctors are confident she can beat the disease. She hopes her story will raise awareness to the symptoms of ovarian cancer, prompting other women to see their doctor if they are worried.

Warning signs of the disease can be difficult to recognise, particularly in the early stages.  This is because they are often the same as symptoms of other less serious conditions, such as irritable bowel syndrome (IBS) or pre-menstrual syndrome (PMS). Mrs Everley said: ‘The symptoms are the same, so I thought it could have been irritable bowel syndrome

Click on the link to read more and watch the video

http://www.dailymail.co.uk/health/article-3027386/Mother-stunned-discover-aggressive-form-cancer-reading-Facebook-post-describing-symptoms.html?ITO=1490&ns_mchannel=rss&ns_campaign=1490

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Laura Everley, 36

Filed under: Cancer, Self Help, , ,

Who Cares: the play that puts the NHS under the knife

This play should be very interesting to watch! 

How do you make a play about something as vast as the NHS and its 1.6 million workers? As playwright Michael Wynne explains, you need to speak to nurses, executives and whistleblowers – and drink a lot of tea

In the summer of 2012, a close relative of Michael Wynne’s was rushed into intensive care. Shortly afterwards, the playwright found himself watching the surreally brilliant moment in Danny Boyle’s Olympics opening ceremony, in which swing-dancing medics and pyjama-wearing children celebrated the achievements of the NHS. He shakes his head at the memory. “I just burst out crying when I saw that. Partly, it was what was going on with my family, but it was also this huge emotional connection. Then I wondered: what is it about the NHS?”

Wynne’s relative recovered (“he had amazing care”), but the seed was planted. What would it be like to write a play examining the NHS’s inner workings, not a doctors-and-nurses drama, but something that delved into the big questions: how it functions, who pays for it, how has it changed, can it survive? Few issues loom so large, particularly in election season, or fire such debate. Some believe the NHS is unsustainable, while others won’t hear a bad word said against it. Free-marketeers argue that private healthcare will improve outcomes, while others believe former health secretary Andrew Lansley should be strung up for instigating the 2012 Health and Social Care Act, a costly restructuring whose benefits are still unclear. “Everyone has a view,” says Wynne. “It’s one of the last black-and-white political subjects.”

Click on the link to read more

http://www.theguardian.com/stage/2015/apr/05/who-cares-michael-wynne-nhs-royal-court-london

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Filed under: NHS, Uncategorized, , ,

New breed of superbugs which are resistant to antibiotics could kill 80,000 Britons in one outbreak as scientists warn even catching flu could have ‘serious’ impact

A new generation of superbugs resistant to antibiotics could kill up to 80,000 Britons in a single outbreak, government research predicts.

In the next 20 years, surgery could become too risky because of an increased risk of infection, while catching flu could have a ‘serious’ impact on individuals. Figures issued by the Cabinet Office warn that previously effective drugs will become useless in the face of resistant bugs, causing a surge in the number of sufferers of illnesses such as tuberculosis and pneumonia.

For the first time the annual National Risk Register of Civil Emergencies, which assesses the challenges posed by terrorism, natural disasters, disease and industrial strife, has included the dangers of antimicrobial resistance (AMR). The report says: ‘Without effective antibiotics, even minor surgery and routine operations could become high-risk procedures, leading to increased duration of illness and ultimately premature mortality. ‘Much of modern medicine, for example organ transplantation, bowel surgery and some cancer treatments, may become unsafe due to the risk of infection. ‘In addition, influenza pandemics would become more serious without effective treatments.

Click on the link to read more

http://www.dailymail.co.uk/health/article-3026963/New-breed-superbugs-resistant-antibiotics-kill-80-000-Britons-one-outbreak-scientists-warn-catching-flu-impact.html?ITO=1490&ns_mchannel=rss&ns_campaign=1490

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Filed under: Uncategorized, , ,

Proton beam centres to be opened

The UK is to get its first three proton beam therapy centres in what is being hailed as a cancer treatment milestone.

Cardiff-based Proton Partners International Ltd is to open the treatment centres in Cardiff, London and Northumberland by 2017 and the first – Cardiff – will be operational next year. The announcement comes not long after the parents of brain cancer survivor Ashya King told how the five year old made a ”miracle” recovery after receiving proton beam therapy which was initially not available to him on the NHS.

Brett and Naghmeh King sparked an international manhunt after taking their son out of hospital in Southampton without doctors’ consent. The Proton Therapy Centre (PTC) in Prague, where Ashya received the treatment last year, said it was ”thrilled” to hear news that a recent scan showed no sign of a tumour. The new UK centres will be available for NHS patients from England, Scotland and Wales, medically-insured private patients and self-paying patients.

Please click on the link to read more

http://www.dailymail.co.uk/wires/pa/article-3025350/Proton-beam-centres-opened.html

Ashya King treatment

The case of Ashya King made headlines

 

Filed under: Cancer, Hospital, NHS, , ,

Hayley Okines, who bravely fought premature ageing disease progeria, dies aged 17

So sad, such a brave and beautiful young soul. My thoughts and prayers go to her family. Fly with all the other angels Hayley, RIP. Joanna 

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A brave teenager who defied one of the world’s rarest genetic conditions has passed away at the age of 17.

Hayley Okines , who suffered with premature ageing disease progeria, was told she would not live past the age of 13. But she pushed on with life courageously and at the age of 14 published her autobiography, called Old Before my Time. However, despite pioneering drug treatment in the US that gave her a new lease of life, she was unable to conquer the disease.

Her mother Kerry Okines posted on Facebook tonight: “My baby girl has gone somewhere better. She took her last breath in my arms at 9.39pm x.”

Click on the link to read more about this remarkable young girl

http://www.mirror.co.uk/news/uk-news/hayley-okines-dead-girl-who-5450699

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Hayley Okines

Filed under: Disabilities, Uncategorized, , ,

Five prescriptions to transform the NHS

The future of the NHS remains a key issue in the run-up to the general election.

As part of its Healthy Visions series, Radio 4 invited five leading practitioners and thinkers to share their prescriptions for the future of healthcare. How does our approach need to change, if the National Health Service is to cope with future demand?

Click on the link to read more

http://www.bbc.co.uk/news/health-32072847

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Filed under: Hospital, NHS, Uncategorized

‘Embrace the disability’ 4 parents share the pain and joy of raising a child with autism

On World Autism Awareness Week these four devoted parents speak about the challenges and rewards they face on a daily basis

Two weeks ago, the story of Odin Cumus’s birthday triggered a huge and heart-warming response worldwide. It also generated crucial awareness around the challenges someone with autism faces. In particular, the story struck a chord with many parents raising children with autism, who are familiar with the misunderstanding and exclusion autistic people and their families experience.

With World Autism Awareness Week this week, four parents have written about the highs, lows trials and rewards of bringing up a child on the autistic spectrum. By doing so, they have provided an emotional and much-needed insight in to what is often described as an invisible disability.

Please click on the link to read their stories

http://www.mirror.co.uk/lifestyle/family/embrace-disability-4-parents-share-5447834

Please watch Sarah Alderson’s video creating awareness for Autism

Filed under: Disabilities, Uncategorized, ,

Photographer wins £2.4m damages payout from the NHS after hospital negligence wrecked her career and left her incontinent and ruined her sex life

A mother-of-three whose sex life was ruined after a negligent delay in spinal surgery has won £2.4million in damages from the NHS.

Heather Tait was in tears yesterday when the award was announced at London’s High Court. The 34-year-old photographer had told an earlier hearing in Birmingham that her ‘passionate’ sex life with her husband Russel had been ruined by the complications she continues to suffer from. Judge Martin McKenna, who made the award, said Mrs Tait had told doctors that she ‘now feels that to a degree there is no point in having intercourse’. She also felt her closeness with her husband had been ‘jeopardised’ by her lack of enjoyment in sex.

Judge Martin McKenna, who made the award, said Mrs Tait had told doctors that she ‘now feels that to a degree there is no point in having intercourse’. She also felt her closeness with her husband had been ‘jeopardised’ by her lack of enjoyment in sex.

Click on link to read more

http://www.dailymail.co.uk/health/article-3019805/Mother-three-wins-2-4m-damages-payout-NHS-hospital-negligence-wrecked-career-left-incontinent.html?ITO=1490&ns_mchannel=rss&ns_campaign=1490

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Heather Tait (left) was suffering from acute back pain when medics sent her home without carrying out an MRI scan

 

Filed under: Hospital, NHS, NHS Blunders, , , ,

Care system gets ‘biggest shake-up in 60 years’

 Major changes to the care system in England are being introduced on Wednesday in what is being dubbed the biggest shake-up for 60 years.

The Care Act 2014 includes rights for those receiving care and those who provide it to their loved ones. It includes standards for access to services from care homes to help in the home for tasks such as washing and dressing. Meanwhile, NHS and care budgets are being merged in Scotland.

The Public Bodies (Joint Working) Act has been described as the most substantial reform north of the border for a generation.  It effectively forces councils and the NHS to work together to provide more streamlined services. That aim is also a major topic of debate in England in the election campaign with the Conservatives, Labour, Liberal Democrats, UKIP and Greens all having plans for greater integration. But the changes coming into force in England on Wednesday apply only to the care system for older people and younger adults with disabilities.

The BBC has launched an online guide to the care system for the over-65s. The “care calculator” covers residential care and the support provided in people’s own homes, for tasks such as washing and dressing. Users can submit their postcode and find out how much each service costs where they live in the UK.

Click on the link to read more and also about the BBC Cost of Care project

http://www.bbc.co.uk/news/health-32136209

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Are you receiving care or providing care for a loved one? What do you think of these changes? You can email haveyoursay@bbc.co.uk with your experience.

Please include a telephone number if you are willing to be contacted by a BBC journalist.

Filed under: Care Homes, Elderly, NHS, , , ,

Why are some doctors STILL so rude to patients’ loved ones? After two very different encounters at the same hospital, this lament that’ll strike a chord with many

  • Sarah Foot says a consultant talked down at her and her sick husband
  • Her ‘hostile body language’ was ‘telling me to shut up and know my place’
  • Says that like all relatives, what she needed was kindness and support

Here’s the scene: My husband Tony is desperately ill and I’m sitting by his hospital bed. He’s been sick for weeks and at one stage I was told he was expected to die. He’s now out of a coma and no longer, thank God, one of the ten sickest people in the vast teaching hospital. But still no one knows what’s wrong with him. He’s been moved from the intensive care unit into a small room when suddenly a consultant descends.

She crashes through the door, followed by half a dozen of her juniors, who crowd round the bed and wait for her to speak. No one’s in any doubt who’s in charge. She talks not at us, but down to us, like some reincarnation of the monstrous Sir Lancelot Spratt (played by James Robertson Justice) from the Doctor In The House films. Except this isn’t funny. Tony has been in hospital for more than a month, but how or why he got ill so suddenly no one really knows.

Click on the link to read more

http://www.dailymail.co.uk/health/article-3018726/Why-doctors-rude-patients-loved-ones-two-different-encounters-hospital-lament-ll-strike-chord-many.html?ITO=1490&ns_mchannel=rss&ns_campaign=1490

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Filed under: Hospital, Uncategorized, , , ,

Woman loses leg after NHS staff accidentally inject it with disinfectant – By Ollie McAteer for Metro.co.uk

The woman, who has only been named as Gina, was mentioned in a report by MPs into the work of the Parliamentary and Health Service Ombudsman.

Gina lost her leg through a catastrophic error at Doncaster Royal Infrimary in 2013. Hospital bosses said that the shocking incident is now being used as an example of good practice to show how lessons had been learned. Her case has been used by Doncaster and Bassetlaw Hospitals NHS Foundation Trust as part of a YouTube clip called ‘The Human Factor: Learning from Gina’s Story’ which has been shown to NHS staff and organisations to show how lessons can be learned from local investigations.

Sewa Singh, Medical Director at Doncaster and Bassetlaw Hospitals, said: ‘We are pleased that the enquiry recognised that Gina’s story is an example of good practice for the NHS. ‘Patient safety is at the forefront of everything we do at DBH and if there are any mistakes we make sure that we carry out a thorough investigation, share the findings with patients and their families and ensure Trust wide learning. ‘We worked closely with Gina and her husband to make an educational video called Gina’s Story that drives home the importance of patient safety and our safety culture and we can’t thank them enough for helping us with this.

‘The inspiring educational video was shared widely both within the organisation, and to other hospitals as we wanted to ensure that no-one else goes through the same experience.’ Please watch this tragic video where one moment loss of concentration cost Gina the loss of her leg.

The Department of Health believes that more than 12,000 hospital deaths could be avoided every year.

More than 10,000 serious incident are reported to NHS England each year.

nhs

Filed under: Hospital, NHS, NHS Blunders, , , ,

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Kay, My Beautiful Elegant Mother

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