Strength in Numbers dedicated to my late mother Kay

We’d never have had our children if we knew they would die so young: Anguish of parents who have passed on fatal gene taking a terrible toll on their family

  • Connie and Joe Elson both suffer from rare and incurable disorder MLD 
  • Condition affects muscle and mental function causing blindness
  • Then leads to paralysis, being unable to walk and ultimately early death 
  • Disorder is gentic with just one in 160,000 suffering from the juvenile form of the disease 

Like all good parents, Nicola and Ian Elson love their two children with all their hearts. But they are burdened with a terrible guilt. For they are living with the sad truth that purely by bringing their beautiful five-year-old daughter Connie and three-year-old son Joe into the world, they have condemned them to a premature death.

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