Strength in Numbers dedicated to my late mother Kay

‘Daddy, What’s Down Syndrome?’ Explaining My Son’s Diagnosis to His Sister by David Perry

My daughter is five and she likes to ask questions. Some are awesome: “Why can’t you see black holes?” “Why is sugar sweet?” “Can I be the first girl president?” “If I do this, will it explode?” (Answers: physics of light; chemistry of food; yes you can; and “Stop shaking that bottle right now!”). Other questions are more complicated: “How do babies get inside mommies’ tummies?” and “Will you and mommy die?” We try to answer all questions honestly, but also appropriately for her age.

A few weeks ago, though, Ellie asked me the one question I’ve been preparing for since before she was born, but was still not ready to answer: “Daddy, what is Down syndrome?”

Click on the link to read more


Nico (who has Down syndrome) with his little sister Ellie. Photo: Courtesy of David Perry

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