So sad, such a brave and beautiful young soul. My thoughts and prayers go to her family. Fly with all the other angels Hayley, RIP. Joanna
*****
A brave teenager who defied one of the world’s rarest genetic conditions has passed away at the age of 17.
Hayley Okines , who suffered with premature ageing disease progeria, was told she would not live past the age of 13. But she pushed on with life courageously and at the age of 14 published her autobiography, called Old Before my Time. However, despite pioneering drug treatment in the US that gave her a new lease of life, she was unable to conquer the disease.
Her mother Kerry Okines posted on Facebook tonight: “My baby girl has gone somewhere better. She took her last breath in my arms at 9.39pm x.”
Click on the link to read more about this remarkable young girl
http://www.mirror.co.uk/news/uk-news/hayley-okines-dead-girl-who-5450699
Hayley Okines
Filed under: Disabilities, Uncategorized, Hayley Okines, premature ageing, progeria
STRENGTH IN NUMBERS 
god bless Hayley, sweet dreams
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