STRENGTH IN NUMBERS

Strength in Numbers dedicated to my late mother Kay

An open plea to NHS England from a mother who was diagnosed with Acute Myeloid Leukaemia

THIS IS AN OPEN PLEA TO THE NHS

There was one option that could save me, a second bone marrow transplant. The team had had a lengthy discussion about it, and they were unanimous, I should have it. But, it wasn’t up to them. It was up to NHS England.

On your web site you describe yourself  as “transparent about the decisions we make, the way we operate and the impact we have.”

I have no idea of how you are forming your decision. I have no point of contact at NHS England. My doctors send emails and leave messages. As far as I’m aware, no one calls them back – and you certainly don’t phone me.

But, four or five times a day my phone does ring and it says, “Caller Unknown”. Every time I get that call, I think it is the call. My heart rips open in my chest and sometimes I sob simply at its ring.

Each day that passes is one that reminds me of all I will lose if the answer is no. I used to be a teacher. How desperately I would like to be one again. I’m a mother. I can’t even bear here to describe the sense of loss I feel every day when I look at my children and wonder where we will all be a year from now.

Call me. Please. I can’t take it.

Please click on the link to read Stacie Lewis’s Open letter to the NHS England and share

http://www.mamalewis.com/2015/04/28/an-open-plea-to-nhs-england/

may-and-I-hospital-bw-300x214

My daughter visiting me in the hospital during my first round of chemotherapy.

 

 

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