STRENGTH IN NUMBERS

Strength in Numbers dedicated to my late mother Kay

Health officials have ‘failed brain tumour patients and their families for decades’

Damning parliamentary report finds patients are let down at every stage from diagnosis to treatment

Health officials have “failed brain tumour patients and their families for decades” and need to invest more in research into the condition, a damning parliamentary report has concluded. Patients with brain tumours are let down at every stage from diagnosis to treatment, according to the Petitions Committee – which said it had little reason to believe the Department of Health had “grasped the seriousness of the issue”. MPs on the committee criticised the Government for not taking the lead in identifying gaps in research and providing funding for new studies which could help save lives.

The Petitions Committee concluded that funding for brain tumour research is inadequate and not given sufficient priority. Brain Tumour Research said just 1 per cent of the national spend on cancer research is allocated to studies into brain tumours.

The report comes after a bereaved sister set up a petition calling for more research into brain tumours – it has since been signed by more than 120,000 people. Maria Lester began campaigning after her brother Stephen Realf died from a brain tumour aged just 26. “We are going to keep shouting and keep getting louder until someone in Government finally hears what we are saying and does something about it,” she said.

Click on the link to read more

http://goo.gl/98tshp

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Filed under: NHS,

World first as surgeons spot a brain tumour – with a ‘bleeping pen’: Laser helps surgeons tell the difference between healthy and cancerous tissue

Surgeons often describe the tricky operation to remove a brain tumour as ‘trying to pluck a spider out of jelly’. Take out too little and the cancerous ‘legs’ remain and regrow – but take out too much and there is a risk of cutting away healthy tissue and leaving the patient disabled.

Now a British hospital is trialling a laser that bleeps like a parking sensor on a car when the scalpel gets to the edge of the cancerous areas, letting surgeons know their margins for error. In a world first, neurosurgeons at London’s Imperial College Healthcare NHS Trust have started using the pen-like probe, called the Core, which shines a near-infrared light on to a tumour and scans for subtle differences between healthy and cancerous tissue.  The device can read the differences in less than a second, and gives a warning sound if the surgeon is close to healthy tissue. About 16,000 Britons are diagnosed with a brain tumour every year, and more children and adults under 40 die from the condition than from any other cancer. There are more than 120 types.

Click on the link to read more

http://www.dailymail.co.uk/health/article-3015974/World-surgeons-spot-brain-tumour-bleeping-pen-Laser-helps-surgeons-tell-difference-healthy-cancerous-tissue.html?ITO=1490&ns_mchannel=rss&ns_campaign=1490

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Filed under: NHS, Uncategorized, , , , ,

Brain tumour boy Ashya King is free of cancer, parents say

Wonderful news. My highest admiration goes out to Ashya’s parents that had the faith and courage to defy doctors here in the UK. Joanna

*****

The parents of five-year-old Ashya King, who were jailed after taking him abroad for brain tumour treatment, say their son is now free of cancer

Ashya King is free of cancer after he was given treatment not available for him on the NHS, his parents have claimed. The five-year-old’s family have told of his “miracle” recovery, as the centre where he was treated declared him cancer-free, The Sun reported. Ashya’s mother Naghmeh, who alongside her husband Brett sparked an international manhunt last summer by removing the little boy from hospital in Southampton without medical consent, described the news as incredible.

“If we had left Ashya with the NHS in Britain, he would not be with us today. He was too weak and would not have survived,” she told the paper. Ashya was finally allowed to undergo treatment at the Proton Therapy Centre (PTC) in Prague for brain cancer after a long legal battle fought by his parents.

Click on the link to read more

http://www.telegraph.co.uk/news/health/children/11489212/Brain-tumour-boy-Ashya-King-is-free-of-cancer-parents-say.html

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Ashya King with his mother Naghmeh in October 2014 after his proton therapy treatment

Filed under: Cancer, Hospital, NHS, Uncategorized, , , ,

My daughter diagnosed her own brain tumour after being turned away by numerous doctors – Daniel Sencier

A hard hitting but great comment to my blog on Monday 10th November, from my lovely daughter Lucienne, who eventually ‘self diagnosed’ her own brain tumour, after doctors and specialists that she went to for help, repeatedly turned her away… Daniel Sencier

My Comment: Spoken from the heart from one who thank goodness had the good sense to say “This is my life” And not put all her trust in the hands that are supposed to help her… Joanna

http://danielsencier.blogspot.co.uk/2014/11/my-daughter-diagnosed-her-own-brain.html?spref=fb

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Filed under: Uncategorized, ,

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