STRENGTH IN NUMBERS

Strength in Numbers dedicated to my late mother Kay

‘We’ve had to investigate the death of our son ourselves’

Jamie Appleby died in 2005 after being admitted to Ysbyty Glan Clwyd, but his mother says she has had to wait a decade for an inquest 

A mother whose epileptic and Down’s Syndrome son died in hospital 10 years ago has spoken of the heartache she has suffered waiting to find out what happened to her beloved boy. Jamie Appleby, 22, who also had a heart condition, died at Ysbyty Glan Clwyd in November 2005, almost a month after being admitted with sickness and pains in his head.

His mother Angie Hobson, from Denbigh, has spoken to the Daily Post about the strain of waiting for the coroner’s office to hold an inquest and rule on a cause of death – a process which has not allowed her to fully get over the pain of her loss. In an emotional interview, she revealed her resolve had been stretched to breaking point as she pursued her quest for answers surrounding her son’s death. She said: “It’s like having cloud over you isn’t it – for a very long time. “You go through peaks and troughs with it. “Because each time there’s a preliminary hearing you have to relearn the case.

Click on the link to read more

http://www.dailypost.co.uk/news/north-wales-news/jamie-appleby-inquest-glan-clwyd-10096263

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Jamie Appleby, who died at Ysbyty Glan Clwyd in 2005

Filed under: Disabilities, NHS Blunders, ,

Help us defeat dementia in Down’s syndrome – Published by University of Cambridge

A team at University of Cambridge are looking at Dementia in people with Down’s syndrome. They are looking at a chemical called Amyloid in the brains of people with Down’s syndrome. They think that this chemical might cause memory problems, and they would like to know more about how it does this in people with Down’s syndrome.

Their long term objective is to understand why people with Down’s syndrome are at risk for memory problems so that safe treatments can be developed that might prevent the development of Alzheimer’s disease in people with Down’s syndrome, and in the general population.

If you have Down’s syndrome or know someone with Down’s syndrome over the age of 40, who might be interested to hear more about this study,  please contact the team using the link below.

http://www.downs-syndrome.org.uk/news/help-us-defeat-dementia-in-downs-syndrome-2/

A short movie about the study is available to watch below:

Filed under: Uncategorized, , ,

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