- Connie and Joe Elson both suffer from rare and incurable disorder MLD
- Condition affects muscle and mental function causing blindness
- Then leads to paralysis, being unable to walk and ultimately early death
- Disorder is gentic with just one in 160,000 suffering from the juvenile form of the disease
Like all good parents, Nicola and Ian Elson love their two children with all their hearts. But they are burdened with a terrible guilt. For they are living with the sad truth that purely by bringing their beautiful five-year-old daughter Connie and three-year-old son Joe into the world, they have condemned them to a premature death.
Click on the link to read more
Filed under: Uncategorized, Metachromatic Leukodystrophy, MLD