STRENGTH IN NUMBERS

Strength in Numbers dedicated to my late mother Kay

Campaigning father invited to sit on NHS England safety body after Welsh ‘snub’

It has been my privilege to have known Will Powell for many years now and his perseverance in bringing justice for his son Robbie going on for 25 years. Will has helped so many people within that time who have also gone through trauma in losing a loved one. A worthy advocate for the Independent Patient Safety Investigation Service (Ipsis)  Joanna

Will Powell fought a lengthy battle to have criminal prosecutions brought against a number of medical staff involved in the negligent treatment of his 10-year-old son

A bereaved father who has spent 25 years campaigning for justice for his son has been invited to sit on a expert patient safety group by NHS England.

But Will Powell, of Ystradgynlais Powys, who has fought a lengthy battle to have criminal prosecutions brought against a number of medical staff involved in the negligent treatment of 10-year-old Robbie, said he was saddened that he was not taken as seriously by NHS Wales.

Robbie died of Addison’s disease, a rare illness that stops the adrenal glands pumping vital hormones. Doctors did not act on a suspicion that he had the condition and he did not receive the treatment that would have saved his life. Six years later the NHS accepted that negligence had occurred at Morriston Hospital, Swansea.

Click on the link to read more

http://www.walesonline.co.uk/news/wales-news/campaigning-father-invited-sit-nhs-10080421

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Will Powell and his son Robbie

Filed under: NHS Blunders, , , , ,

Statement from NHS England and the Health and Social Care Information Centre in response to the Daily Telegraph article, ‘Tesco can see your medical records’

We would like to make clear that the article published by the Daily Telegraph, ‘Tesco can see your medical records’ contains a number of inaccuracies.

The Summary Care Record (SCR) is used by healthcare professionals, on explicit consent of the patient, to support direct patient care. While a regulated healthcare professional may have secure, controlled access to the SCR in a pharmacy within a supermarket as with any other pharmacy setting, this information is not accessible by other means and will never be available to supermarkets for other purposes, such as marketing. The information can only be accessed through a secure, encrypted private network by authorised, regulated pharmacy professionals who have been carefully granted a pin-protected access card.

If a pharmacy professional shared confidential patient information for any purpose other than direct care, they can be held liable in law and held to account by the General Pharmaceutical Council, which has the legal authority to apply sanctions, up to and including withdrawal of their license to practice. There are specific processes in place which means accesses to SCR are monitored to make sure they are appropriate and are only made for patients when there is a clinical need.

NHS England commissioned the Health and Social Care Information Centre to complete a pilot project which enabled 140 pharmacies to access SCR. A report of the findings from this project, which the article states has been ‘seen by the Daily Telegraph’ demonstrates significant benefits to patients, pharmacy and general practice. The report was made public on our website on 23 June 2015:http://systems.hscic.gov.uk/scr/library/poc_report.pdf

Click on the link to read more

http://www.hscic.gov.uk/article/6637/Statement-from-NHS-England-and-the-Health-and-Social-Care-Information-Centre-in-response-to-the-Daily-Telegraph-article-Tesco-can-see-your-medical-records

The Telegraph news article 

Boots, Tesco and Superdrug to get access to NHS medical records

http://www.telegraph.co.uk/news/health/11790711/Boots-Tesco-and-Superdrug-to-get-access-to-NHS-medical-records.html

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Filed under: NHS, , ,

NHS England announces new plan to meet emergency care targets

A drive to make more one-stop shops for urgent and emergency care will be announced on Friday as the NHS in England seeks to remedy its failure to meet its target for dealing with 95% of A&E patients within four hours last winter.

NHS England announced eight “vanguard” areas to transform services. Among the measures are the acceleration of the development of GP services in hospitals, mobile treatment centres using ambulance staff, and same-day crisis response teams including GP’s and other acute home-visiting professionals. More mental health street triage services will also be rolled out, along with initiatives involving a broader role for community pharmacists.

The moves, designed to break down barriers between primary care and hospitals, are among £200m worth of experiments. The NHS hopes these will be as successful as the setting up of regional major trauma units three years ago, which are said to have brought about a 50% increase in the odds of survival for patients and saved hundreds of lives.

Click on the link to read more

http://www.theguardian.com/society/2015/jul/24/nhs-england-announces-eight-vanguard-areas-emergency-care-targets

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Filed under: A&E, GP's, Hospital, NHS, , , , ,

Urgent action pledged on over-medication of people with learning disabilities

NHS England has today promised rapid and sustained action to tackle the over-prescribing of psychotropic drugs to people with learning disabilities after three separate reports highlighted the need for change.

Research commissioned by the health body and delivered in three reports from the Care Quality Commission, Public Health England, and NHS Improving Quality has found that:

  • There is a much higher rate of prescribing of medicines associated with mental illness amongst people with learning disabilities than the general population, often more than one medicine in the same class, and in the majority of cases with no clear justification;
  • Medicines are often used for long periods without adequate review, and;
  • There is poor communication with parents and carers, and between different healthcare providers.

One of the reports, authored by Public Health England, estimates that up to 35,000 adults with a learning disability are being prescribed an antipsychotic, an antidepressant or both without appropriate clinical justification.

Click on the link to read more

http://www.england.nhs.uk/2015/07/14/urgent-pledge/

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Filed under: Disabilities, NHS, , , ,

Revealed: High level fears over patient consent abuse. By Shaun Lintern for HSJ

The Care Quality Commission and NHS England have raised concerns that the current system for securing patient consent for treatment is open to abuse. It comes amid allegations that some doctors have retrospectively altered consent forms, HSJ can reveal.

Revealed: High level fears over patient consent abuse.  In a letter seen by HSJ, the two bodies wrote to General Medical Council chief executive Niall Dickson to warn that patients were not always being given copies of their completed consent forms.  The concern is that this leaves scope for rogue clinicians to amend forms after the treatment to hide mistakes or procedures undertaken without informed consent.

Click on the link to read more

Revealed High level fears over patient consent abuse By Shaun Lintern for HSJ

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Filed under: NHS, , , , ,

An open plea to NHS England from a mother who was diagnosed with Acute Myeloid Leukaemia

THIS IS AN OPEN PLEA TO THE NHS

There was one option that could save me, a second bone marrow transplant. The team had had a lengthy discussion about it, and they were unanimous, I should have it. But, it wasn’t up to them. It was up to NHS England.

On your web site you describe yourself  as “transparent about the decisions we make, the way we operate and the impact we have.”

I have no idea of how you are forming your decision. I have no point of contact at NHS England. My doctors send emails and leave messages. As far as I’m aware, no one calls them back – and you certainly don’t phone me.

But, four or five times a day my phone does ring and it says, “Caller Unknown”. Every time I get that call, I think it is the call. My heart rips open in my chest and sometimes I sob simply at its ring.

Each day that passes is one that reminds me of all I will lose if the answer is no. I used to be a teacher. How desperately I would like to be one again. I’m a mother. I can’t even bear here to describe the sense of loss I feel every day when I look at my children and wonder where we will all be a year from now.

Call me. Please. I can’t take it.

Please click on the link to read Stacie Lewis’s Open letter to the NHS England and share

http://www.mamalewis.com/2015/04/28/an-open-plea-to-nhs-england/

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My daughter visiting me in the hospital during my first round of chemotherapy.

 

 

Filed under: Cancer, NHS, , ,

NHS England delays treatment choices after legal threat – HSJ – By Sarah Calkin

NHS England has cancelled key meetings at which it was due to decide whether to fund a series of treatments for serious conditions following a threat of judicial review, HSJ has learned. The organisation’s first specialised services “prioritisation round” meetings were due to take place tomorrow and on Thursday, at which its clinical priorities advisory group was due to consider cases for funding drugs and treatments previously put forward by clinicians on its specialised commissioning clinical reference groups. However, CPAG members were informed on Friday last week that the “prioritisation round” meetings had been postponed.

Click on the link to read

NHS England delays treatment choices after legal threat

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Filed under: Uncategorized,

NHS England: Where’s the money going?

NHS England won’t publish data on where it spends its money, including to private companies. What happened to the promised transparency?

The new NHS is big on transparency.  Tim Kelsey, the senior official overseeing care.data and all things digital in the NHS yesterday announced that transparency is “the most important innovation in health”, adding rather dramatically: “The closed world is the enemy of good care.” Jeremy Hunt has said greater openness makes the NHS ‘safer for patients’. NHS England chief, Simon Stevens, has gone as far as claiming that NHS England “has set new standards for openness and transparency in all of its operations, compared with what went before.” The rhetoric is clear. But how transparent is the new NHS? Not very, it turns out. NHS England is one of the only (if not the only) government body that does not regularly publish how it spends our money. Given that they are stewards of the NHS’s £95 billion budget, this matters.

Click on the link to read and sign the petition

https://www.opendemocracy.net/ournhs/tamasin-cave/nhs-england-where’s-money-going

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Filed under: NHS, Uncategorized, ,

NHS England consults on plans for a sustainable Cancer Drugs Fund

NHS England is proposing changes to the way its Cancer Drugs Fund (CDF) operates, in order that it delivers maximum benefit for patients, within the resources available.Clinicians and cancer specialists believe the changes, if adopted, would:

  • improve patient access to the most clinically effective drugs available through the fund;
  • encourage pricing that delivers value for money for patients and the public; and
  • put the fund on a much firmer footing for the future, as it faces increasing demand and growing financial pressure.

Please click on the link to read more

http://www.england.nhs.uk/2014/10/03/cdf-consultation/

 

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Filed under: Uncategorized, , ,

Improving palliative care data collection: joint statement from PHE and NHS England

Proposal for the national collection of individual level data.

Joint statement from PHE and NHS England on plans for improving palliative care data.

Working with the National Council for Palliative Care, Help the Hospices and the Cicely Saunders Institute.

Click on the link to download

https://www.gov.uk/government/publications/improving-palliative-care-data-collection-joint-statement-from-phe-and-nhs-england

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Filed under: Uncategorized, , ,

NHS England withdraws involvement from baby death probe – Written by Shaun Lintern for HSJ 27th August 2014

NHS England appears to have ruled itself out of direct involvement in patient care investigations after refusing to join the Care Quality Commission in a probe into the death of a baby girl.
In a policy line direct from chief executive Simon Stevens, NHS England yesterday declared it is “not and has never been an investigatory body”. This comes despite the body possessing the power to investigate patient care in its role as a commissioner.
The commissioning body issued the line after it emerged the CQC had signalled its intention to launch an investigation into the death of a baby girl with the close involvement of NHS England.
NHS England’s national director of patient safety Mike Durkin had “worked closely” with the CQC as the watchdog developed an approach to the investigation, NHS England confirmed

Please click on the link to read full article
NHS England withdraws involvement from baby death probe

Copied from HSJ artical : http://www.hsj.co.uk/news/nhs-england-withdraws-involvement-in-baby-death-probe/5074100.article#.U_3iDLd0zIU

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Filed under: Uncategorized, , ,

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