STRENGTH IN NUMBERS

Strength in Numbers dedicated to my late mother Kay

NHS moves to stop bereaved families blocking donation of relatives’ organs

If someone wishes to become an organ donor then their family should respect their wishes. Totally disrespectful of their dying wishes and totally selfish in not wanting to help save the life of another. It’s the kindest thing anyone can do. Joanna

Families have vetoed the donation of organs from hundreds of registered donors in the last five years, new figures show

NHS Blood and Transplant (NHSBT) data suggests relatives blocked transplants in 547 – or one in seven – cases since 2010.  The body said it would no longer seek a family’s formal consent in order to reduce the number of “overrides”, according to the BBC. The bereaved will be given a leaflet which explains consent remains with the deceased, although they can still block donation by providing reasons in writing.

NHSBT estimated the blocked donors would have provided organs for 1,200 of the 6,578 patients on the waiting list for a transplant, while not asking relatives could result in the number donors rising by 9%.

Sally Johnson, director of organ donation and transplantation at NHSBT, told the broadcaster: “We are taking a tougher approach – but also a more honest approach.

“My nurses are speaking for the person who has died. People who join the register want and expect to become organ donors. We do not want to let them down. “We have every sympathy for families – and of course we do not want to make their grief worse. We think this will make what is a hugely distressing day easier for them, by reducing the burden on them. “The principle that the individual affected is the one who consents applies throughout medicine, and it is not different because someone has died.”

The Guardian – Press Association http://goo.gl/o12HXQ

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Filed under: Uncategorized,

“Our baby was a hero” – parents speak one year on from their baby´s death

For Jess Evans and Mike Houlston from Cardiff, the birth of twin boys Teddy and Noah on 22 April 2014 was one of both heartbreak and hope. Teddy was born with a rare yet fatal condition – anencephaly – but his parents were determined his short life would not be in vain. Once the diagnosis was confirmed during pregnancy, the parents discussed and wanted, if possible, for his organs to be donated. The family managed to spend precious time with him before he passed away and Teddy became the youngest organ donor in the UK. In the last 10 years, 39 babies younger than 2 years old have become organ donors helping to save the lives of strangers.

As his twin Noah celebrates his first birthday the family are using the anniversary to mark the occasion when his brother Teddy became a hero. His kidneys were transplanted to help save the life of another person.

Click on the link to read more

http://organdonation.nhs.uk/TeddysStory/index.asp

teddystory

Sign up to the NHS Organ Donor Register and tell your relatives that you want to donate. Visit the Registration form or call 0300 123 23 23.

Filed under: Self Help, Uncategorized,

Chloe, 14, waits for heart transplant – Please share

Teenager Chloe Beaney may only have days to live – unless a donor heart can be found. Her desperate family are glued to the bedside of the 14-year-old awaiting news that would save her life. Chloe was admitted to Newcastle’s Freeman Hospital two weeks ago and put at the top of the transplant list having seen her health rapidly deteriorate since summer. So far, two matches have failed due to the poor condition of the hearts, leaving mum Katrina Wilkinson, dad Colin Wilkinson, step sister Siobhan, 18, and brother Dylan, 10, praying for “third time lucky”, as doctors say she may have just days to live.

Click on the link to read

http://www.chroniclelive.co.uk/news/north-east-news/cramlington-familys-plea-more-registered-8164737

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