STRENGTH IN NUMBERS

Strength in Numbers dedicated to my late mother Kay

My name is Bernard Benton and I need the right to live, I need treatment

Toni Curry is fighting for the right for her father to live.

I have had to ask my poor dad the hardest question in my entire life today , and that was whether or not he chooses to be treated or allowed to die naturally without any treatment at all, in preperation for judgement day tomorrow at the surgery, so that I can fully express his current wishes as a consequence of Billingham district nursing team and Stockton PCT wanting a clear cut beurogratic case.

My dad is called bernard benton and he is bed bound with multiple co morbidities. He is 87 yrs old and is cared for at home by myself Toni Curry his daughter.

Due to dads illnesses the gp back in January 2015 thought it would be of no benefit to dad to send him back into hospital for treatment. I reserved the right to disagree at any point as it all depended on dads views at the end of the day. The division would have to lie with him to refuse any treatment. As with all elderly people when suffering an infection, they then can become confused and disorientated with fluctuating capacity. This is no different for my father.

Please click on the link below to read the rest of my fathers story

My dad is called bernard benton and he is bed bound with multiple co morbidities

 

This was my dads reply , and I fully support him on this.

Love and respect you dad xxxxxxxxxxx

Filed under: Elderly, Hospital, NHS, Uncategorized, , ,

A mother’s plea to the NHS

With the NHS having suspended its procedure for approving vital treatments, sufferers of rare diseases have been left in limbo. Katy Brown tells her family’s story.

Let me introduce you to Sam. He is our six year old son and for the past two months we have been fighting to keep him smiling. More precisely, we have been fighting for the drug that he had been trialling for almost three years to be funded by the NHS. You see Sam has something called an ultra rare disease. That means that there are less than 500 sufferers in the country. Actually there are just 78 sufferers of Morquio Syndrome in England. Just 78.

How a disease with 20,000 sufferers is funded, researched, prioritised and understood is very, very different to one where there are just 78 people affected. Let me paint you a picture of Morquio. An adult the same size as a three year old. Organs squashed into a very small space. Severe physical disability. Hearing problems, sight problems, heart problems, lung problems. Life expectancy on average of 25. No treatment.

Please click on the link to read more

http://www.yorkshirepost.co.uk/news/features/a-mother-s-plea-to-the-nhs-1-7063396

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19 November 2014……. Sam Brown, 6, with parents Katy and Simon from Otley. Sam has Morquio syndrome. He is being treated with drugs thanks to a trial in Manchester which have significantly improved his condition but cash for this will run out next month and the NHS is unlikely to pick up the tab.TJ100584h Picture by Tony Johnson

Filed under: Uncategorized, , , ,

Feedback on NHS organisations ‘valued and encouraged’ – NHS Confederation

The latest publication by the Ombudsman is a welcome reminder that we must have an unwavering focus on handling complaints. Positive and negative feedback about NHS organisations should be “equally valued and encouraged”, with patients confident that complaints will be dealt with promptly, effectively and appropriately, the head of the NHS Confederation has said. Responding to publication of the Health Service Ombudsman’s investigations into NHS complaints, Rob Webster said it is vital that patients, their families and carers feel safe and able to feed back on their NHS care and treatment. “While both positive and negative feedback should be equally valued and encouraged, it is essential that we make every effort to learn from when things go wrong, and that NHS organisations deal with patients’ concerns promptly, effectively and appropriately,” he said.

Click on the link to read more

http://www.nhsconfed.org/news/2014/10/feedback-valued-and-encouraged

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Filed under: Uncategorized, , , ,

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